EUCOPE Blog

Showing all entries tagged with »research«


May 15, 2020

ECRD 2020: OMPs Development in a post-COVID-19 World

The 10th European Conference on Rare Diseases (ECRD), the largest patient-led event on rare diseases and orphan products, presented an excellent opportunity for exchange among the patient community and experts from various backgrounds.  Bringing the perspective of OMP focused small… read more


February 27, 2020

Rare Disease Day: Celebrating an empowered community

On Rare Diseases Day, EUCOPE is delighted to host an interview with Laurence Woollard, patient expert and rare disease advocate, to discuss with him the importance of an engaged community and the opportunities and challenges new treatments can bring. Hi… read more



March 12, 2019

Are Solutions for Rare Diseases in Jeopardy?

This blog was originally published in French, in Les Echos newspaper. How can we align the progress of medicine with the patients’ needs? How can we ensure that new life-saving medicines continue to be produced? How can Europe keep its… read more