Showing all entries tagged with »rare diseases«
May 15, 2020
The 10th European Conference on Rare Diseases (ECRD), the largest patient-led event on rare diseases and orphan products, presented an excellent opportunity for exchange among the patient community and experts from various backgrounds. Bringing the perspective of OMP focused small… read more
February 27, 2020
On Rare Diseases Day, EUCOPE is delighted to host an interview with Laurence Woollard, patient expert and rare disease advocate, to discuss with him the importance of an engaged community and the opportunities and challenges new treatments can bring. Hi… read more
June 5, 2019
The first gene and cell therapies have been approved for use in Europe and many more are expected to enter European markets in the near future. These state-of-the-art techniques can revolutionise medicine as we know it. Bringing high hopes for… read more
March 12, 2019
This blog was originally published in French, in Les Echos newspaper. How can we align the progress of medicine with the patients’ needs? How can we ensure that new life-saving medicines continue to be produced? How can Europe keep its… read more